Bas-Rhin Cancer Registry (Certified Registry)
France, 1975
Created on
Nov 15, 2025
Last modified
Nov 15, 2025
Page views
4
Identification
Survey ID number
FRESH-PEF215-en
Title
Bas-Rhin Cancer Registry (Certified Registry)
Country
| Name |
|---|
| France |
Abstract
- Registry objectives regarding public health: The registry was created in 1974 with two main aims: 1. To create a useful tool for epidemiological research and evaluation, modelled on tools established in various other countries; 2. To verify morbidity data of the unfavourable situation in Alsace with regards to high cancer mortality. The Bas-Rhin cancer registry is responsible for estimating cancer incidence, prevalence and survival. The registry also aims to participate in national and international studies in these areas: comparing incidence rates to locate different geographical regions and compare them in a database; to develop existing work to identify factors that explain variations in cancer incidence, prevalence and survival. The cancer registry is also a tool for assessing the effectiveness of preventive measures, especially screening campaigns throughout the département for breast cancer since 1989, cervical and colon cancer since 1994 and colon and rectal cancer since 2008. As such, the trend in incidence rate can be monitored and the proportion of false negatives can be documented. - Registry research objectives: The registry is developing research in the field of estimating cancer incidence in geographical areas with no registry, as well as estimating survival through relative survival and healing models in order to obtain the best "current" survival estimates.
Kind of Data
['Clinical data','Socio-demographic data']
Unit of Analysis
Individuals
Scope
Topics
| Topic | Vocabulary | URI |
|---|---|---|
| Oncology | health theme | |
| cim-11 | http://id.who.int/icd/entity/846453488 |
Keywords
tool
epidemiological research
assessment
morbidity
mortality
incidence
prevalence
survival
Coverage
Geographic Coverage
['Grand Est']
Universe
{
"level_sex_clusion_I": [
"Male",
"Female"
],
"level_age_clusion_I": [
"Infant (28 days to 2 years)",
"Child, Preschool (2 to 5 years)",
"Child (6 to 12 years)",
"Young Adult (19 to 24 years)",
"Adult (25 to 44 years)",
"Middle Aged (45 to 64 years)",
"Aged (65 to 79 years)",
"Aged, 80 and over (80 years and more)"
],
"level_type_clusion_I": [
"Patients population"
],
"level_type_clusion_other": "",
"clusion_I": "",
"clusion_E": ""
}
Producers and sponsors
Primary investigators
| Name |
|---|
| Michel Velten |
Producers
| Name | Role |
|---|---|
| LES HOPITAUX UNIVERSITAIRES DE STRASBOURG (HUS) | sponsor |
Funding Agency/Sponsor
| Name |
|---|
| SANTE PUBLIQUE FRANCE |
Study authorization
Agency
| Agency name |
|---|
| CNIL |
Sampling
Sampling Procedure
['Other']
Survey instrument
Questionnaires
Access on specific project only
Methodology notes
Observational Study
Data collection
Dates of Data Collection
| Start |
|---|
| 1975 |
Time Method
Morbidity registry
Mode of data collection
- Converting or copying information into a structured record
Study activities
Study activities
Type
primary evaluation
Description
Health event/morbidity
Health event/mortality
Data Access
Access conditions
Contact the principal investigator
Availability Status
Restricted access
Contacts
Contacts
| Name | |
|---|---|
| Michel Velten | michel.velten@unistra.fr |
Metadata production
DDI Document ID
FRESH-PEF215-en