FRESH-PEF5222-en
Auvergne-Loire observatory on chronic inflammatory diseases of the musculoskeletal system occurring in childhood - Arthrites Juvéniles Idiopathiques cohort (long-term follow-up of children with juvenile idiopathic arthritis)
APICALE-AJI
| Name |
|---|
| France |
The primary objective of this project is to describe the very long-term progression of Juvenile Idiopathic Arthritis (AJI) in children, from onset of the disease until adulthood that extends past the transition period. The follow-up will particular focus on joint disease activity as well as very long-term repercussions.- The secondary objectives will be to provide data relating to treatment effectiveness and tolerance, especially concerning the outcome for children intolerant to methotrexate and the monitoring children in biotherapy. - This follow-up will also aid articulation between research and practice by proposing further studies in 3 areas: o nursing research and therapeutic education o study of bone microarchitecture o study of endothelial function and vascular abnormalities
['Clinical data','Participant-reported health data','Biological data']
Individuals
| Topic | Vocabulary | URI |
|---|---|---|
| Rheumatology | health theme | |
| cim-11 | http://id.who.int/icd/entity/1987089698 | |
| Environmental determinants: Climate | health determinant | |
| Environmental determinants | health determinant |
['Auvergne Rhône-Alpes']
{
"level_sex_clusion_I": [
"Male",
"Female"
],
"level_age_clusion_I": [
"Child, Preschool (2 to 5 years)",
"Child (6 to 12 years)"
],
"level_type_clusion_I": [
"Patients population"
],
"level_type_clusion_other": "",
"clusion_I": "",
"clusion_E": ""
}
| Name |
|---|
| Etienne Merlin |
| Aurélie Chausset |
| Name | Role |
|---|---|
| CENTRE HOSPITALIER UNIVERSITAIRE DE CLERMONT-FERRAND | sponsor |
| INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) | sponsor |
| Name |
|---|
| MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES |
| Agency name |
|---|
| CNIL |
['Through organizations (health services or institutions, schools, businesses, etc.)']
['Other']
Access on specific project only
Observational Study
| Start |
|---|
| 2011 |
Longitudinal or cohort study
Restricted access
| Name | |
|---|---|
| Etienne Merlin | e_merlin@chu-clermontferrand.fr |
| Aurélie Chausset | achausset@chu-clermontferrand.fr |
FRESH-PEF5222-en