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Auvergne-Loire observatory on chronic inflammatory diseases of the musculoskeletal system occurring in childhood - Arthrites Juvéniles Idiopathiques cohort (long-term follow-up of children with juvenile idiopathic arthritis)

France, 2011
Reference ID
FRESH-PEF5222-en
Producer(s)
Etienne Merlin, Aurélie Chausset
Metadata
DDI/XML JSON
Created on
Nov 15, 2025
Last modified
Nov 15, 2025
Page views
5
  • Study Description
  • Get Microdata
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts
  • Metadata production
  • Identification

    Survey ID number

    FRESH-PEF5222-en

    Title

    Auvergne-Loire observatory on chronic inflammatory diseases of the musculoskeletal system occurring in childhood - Arthrites Juvéniles Idiopathiques cohort (long-term follow-up of children with juvenile idiopathic arthritis)

    Abbreviation or Acronym

    APICALE-AJI

    Country
    Name
    France
    Abstract

    The primary objective of this project is to describe the very long-term progression of Juvenile Idiopathic Arthritis (AJI) in children, from onset of the disease until adulthood that extends past the transition period. The follow-up will particular focus on joint disease activity as well as very long-term repercussions.- The secondary objectives will be to provide data relating to treatment effectiveness and tolerance, especially concerning the outcome for children intolerant to methotrexate and the monitoring children in biotherapy. - This follow-up will also aid articulation between research and practice by proposing further studies in 3 areas: o nursing research and therapeutic education o study of bone microarchitecture o study of endothelial function and vascular abnormalities

    Kind of Data

    ['Clinical data','Participant-reported health data','Biological data']

    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary URI
    Rheumatology health theme
    cim-11 http://id.who.int/icd/entity/1987089698
    Environmental determinants: Climate health determinant
    Environmental determinants health determinant
    Keywords
    Very long-term progression of children with Juvenile Idiopathic Arthritis (AJI) transition period joint disease repercussions

    Coverage

    Geographic Coverage

    ['Auvergne Rhône-Alpes']

    Universe

    {
    "level_sex_clusion_I": [
    "Male",
    "Female"
    ],
    "level_age_clusion_I": [
    "Child, Preschool (2 to 5 years)",
    "Child (6 to 12 years)"
    ],
    "level_type_clusion_I": [
    "Patients population"
    ],
    "level_type_clusion_other": "",
    "clusion_I": "",
    "clusion_E": ""
    }

    Producers and sponsors

    Primary investigators
    Name
    Etienne Merlin
    Aurélie Chausset
    Producers
    Name Role
    CENTRE HOSPITALIER UNIVERSITAIRE DE CLERMONT-FERRAND sponsor
    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) sponsor
    Funding Agency/Sponsor
    Name
    MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']

    Sampling Procedure

    ['Other']

    Survey instrument

    Questionnaires

    Access on specific project only

    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start
    2011
    Time Method

    Longitudinal or cohort study

    Mode of data collection
    • Converting or copying information into a structured record

    Study activities

    Study activities
    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality Health care consumption and services

    Data Access

    Availability Status

    Restricted access

    Contacts

    Contacts
    Name Email
    Etienne Merlin e_merlin@chu-clermontferrand.fr
    Aurélie Chausset achausset@chu-clermontferrand.fr

    Metadata production

    DDI Document ID

    FRESH-PEF5222-en

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