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A retrospective study on the epidemiology and treatments of patients with multiple sclerosis (MS) in Metropolitan France

France, 2015
Reference ID
FRESH-PEF73330-en
Producer(s)
Jerôme De Seze, Gilles Defer, Michel Clanet
Metadata
DDI/XML JSON
Created on
Nov 15, 2025
Last modified
Nov 15, 2025
Page views
4
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Metadata production

    • Identification

    Survey ID number

    FRESH-PEF73330-en
    Title

    A retrospective study on the epidemiology and treatments of patients with multiple sclerosis (MS) in Metropolitan France
    Abbreviation or Acronym

    MS Network
    Country
    Name
    France
    Abstract

    Describe the demographic characteristics of patients with Multiple Sclerosis (MS) in Metropolitan France and describe their therapeutic management Secondary objectives: - describe the conditions of use of long-term MS treatments; - evaluate the therapeutic effect in real observational situations of the long-term MS treatments; - describe the reasons for change and discontinuation of long-term MS treatments; - evaluate compliance to treatment with Rebif
    Kind of Data

    ['Clinical data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary URI
    Neurology health theme
    cim-11 http://id.who.int/icd/entity/564605304
    Healthcare system determinants: Use of care health determinant
    Healthcare system determinants health determinant
    Keywords
    Multiple Sclerosis

    Coverage

    Universe

    {
    "level_sex_clusion_I": [
    "Male",
    "Female"
    ],
    "level_age_clusion_I": [
    "Child, Preschool (2 to 5 years)",
    "Child (6 to 12 years)",
    "Young Adult (19 to 24 years)",
    "Adult (25 to 44 years)",
    "Middle Aged (45 to 64 years)",
    "Aged (65 to 79 years)",
    "Aged, 80 and over (80 years and more)"
    ],
    "level_type_clusion_I": [
    "Patients population"
    ],
    "level_type_clusion_other": "",
    "clusion_I": "",
    "clusion_E": ""
    }

    Producers and sponsors

    Primary investigators
    Name
    Jerôme De Seze
    Gilles Defer
    Michel Clanet
    Producers
    Name Role
    MERCK SANTE sponsor
    Funding Agency/Sponsor
    Name
    MERCK SANTE

    Study authorization

    Agency
    Agency name
    CNIL
    CESREES

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['Other']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2015 2015
    Time Method

    Cross-sectional study: repeated (excluding case-control studies)
    Mode of data collection
    • Interview with the participant (including clinical)
    • Converting or copying information into a structured record

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality Health care consumption and services Quality of life/health perception

    Data Access

    Availability Status

    To be defined

    Metadata production

    DDI Document ID

    FRESH-PEF73330-en
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