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Adult and pediatric cohort with Still's disease (RaDiCo-ACOSTILL)

France, 2017 - 2027
Reference ID
FRESH-PEF74149-en
Producer(s)
Sophie Georgin-Lavialle, Bruno Fautrel
Metadata
DDI/XML JSON
Created on
Nov 15, 2025
Last modified
Nov 15, 2025
Page views
4
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Quality standards
  • Data Access
  • Contacts
  • Metadata production

    • Identification

    Survey ID number

    FRESH-PEF74149-en
    Title

    Adult and pediatric cohort with Still's disease (RaDiCo-ACOSTILL)
    Abbreviation or Acronym

    RaDiCo-ACOSTILL
    Country
    Name
    France
    Abstract

    The main objective is to describe the natural history of the disease in adult and pediatric populations.
    Kind of Data

    ['Clinical data','Participant-reported health data','Biological data','Paraclinical data (non-biological) : Imaging']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary URI
    Internal medicine health theme
    Paediatrics health theme
    Rheumatology health theme
    cim-11 http://id.who.int/icd/entity/1072688797

    Coverage

    Universe

    {
    "level_sex_clusion_I": [
    "Male",
    "Female"
    ],
    "level_age_clusion_I": [
    "Infant (28 days to 2 years)",
    "Child, Preschool (2 to 5 years)",
    "Child (6 to 12 years)",
    "Young Adult (19 to 24 years)",
    "Adult (25 to 44 years)",
    "Middle Aged (45 to 64 years)",
    "Aged (65 to 79 years)",
    "Aged, 80 and over (80 years and more)"
    ],
    "level_type_clusion_I": [
    "Patients population"
    ],
    "level_type_clusion_other": "",
    "clusion_I": "",
    "clusion_E": ""
    }

    Producers and sponsors

    Primary investigators
    Name
    Sophie Georgin-Lavialle
    Bruno Fautrel
    Producers
    Name Role
    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) sponsor
    Funding Agency/Sponsor
    Name
    AGENCE NATIONALE DE LA RECHERCHE (ANR)

    Study authorization

    Agency
    Agency name
    CPP
    CESREES

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['Other']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2017 2027
    Time Method

    Morbidity registry
    Mode of data collection
    • Converting or copying information into a structured record

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality Health care consumption and services Quality of life/health perception Others

    Quality standards

    Quality standards
    Standard
    ['Drug Dictionary (DCIs)']
    Other quality statement

    Data Management Plan and Data Validation Plan. Continuous data management (automatic control rules and query system)

    Data Access

    Access conditions

    Requests for access to RaDiCo-ACOSTILL data (aggregated or individual) will be reviewed by the Scientific Committee following the submission of a summary of a Specific Research Project, as defined in the Access Charter.
    Availability Status

    Restricted access

    Contacts

    Contacts
    Name Email
    Sophie Georgin-Lavialle bruno.fautrel@aphp.fr
    Bruno Fautrel sophie.georgin-lavialle@aphp.fr

    Metadata production

    DDI Document ID

    FRESH-PEF74149-en
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