{"doc_desc":{"title":"Survey of beneficiaries of the French Caregiver Compensatory Allowance (ACTP) and the French Disability Compensation Benefit (PCH)","idno":"FRESH-PEF5585-en","producers":[{"name":" DREES","affiliation":"MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES"}]},"study_desc":{"title_statement":{"idno":"FRESH-PEF5585-en","IDno":{"metadata_no":[{"agency":"PEF","code":"5585"},{"agency":"FReSH","code":"FRESH-PEF5585"}]},"title":"Survey of beneficiaries of the French Caregiver Compensatory Allowance (ACTP) and the French Disability Compensation Benefit (PCH)","alternate_title":""},"study_authorization":{"agency":[]},"authoring_entity":[{"type":"investigator","name":"Maude;ESPAGNACQ","PILabo":"DREES","affiliationName":"MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES","extlink":[{"title":"ORCID","uri":"0009-0000-4488-5507","role":"pi id"},{"title":"IdRef","uri":"132064529","role":"pi 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id","title":"ROR"},{"uri":"130016546","role":"organisation id","title":"SIREN"}]}]},"study_info":{"keywords":[{"keyword":"Handicap"},{"keyword":"Social benefit"},{"keyword":"Beneficiary"},{"keyword":"Personal aid"}],"topics":[{"topic":"General medicine","vocab":"health theme","extLink":[{"title":"ESV","uri":"http:\/\/data.europa.eu\/8mn\/euroscivoc\/4b9f8efb-68dd-45a1-b04c-d23d457d6898"},{"title":"MeSH","uri":"http:\/\/id.nlm.nih.gov\/mesh\/D058006"}]},{"topic":"Behavioral determinants","vocab":"health determinant"}],"purpose":"To evaluate the implementation of disability compensation benefit (PCH) created by the law of 11 February 2005 on the equality of rights and opportunities, the participation and citizenship of persons with disabilities starting on 1 January 2006, from the point of view of the beneficiaries, in terms of responses to their need for aid and appraisal of the benefits and to compare the beneficiary populations of PCH and Caregiver Compensatory Allowance (ACTP) instituted in 1975 and planned to be replaced by PCH.","abstract":"","coll_dates":[{"start":"2009-01-01"}],"nation":[{"name":"France","abbreviation":"fr","extLink":{"vocab":"ISO","vocabURI":"fr"}}],"geog_coverage":"","analysis_unit":"Individuals","universe":"{\n    \"level_sex_clusion_I\": [\n        {\n            \"value\": \"Male\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D008297\"\n            }\n        },\n        {\n            \"value\": \"Female\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D005260\"\n            }\n        }\n    ],\n    \"level_age_clusion_I\": [\n        {\n            \"value\": \"Young Adult (19 to 24 years)\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D055815\"\n            }\n        },\n        {\n            \"value\": \"Adult (25 to 44 years)\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D000328\"\n            }\n        },\n        {\n            \"value\": \"Middle Aged (45 to 64 years)\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D008875\"\n            }\n        }\n    ],\n    \"level_type_clusion_I\": \"People with disabilities\",\n    \"level_type_clusion_other\": \"\",\n    \"clusion_I\": \"persons with disabilities who are beneficiaries of ACTP or PCH\",\n    \"clusion_E\": \"\"\n}","data_kind":"['Participant-reported health data']","quality_statement":{"standards":[{"name":"","committee":"","governance":""}],"other_quality_statement":""}},"study_development":{"development_activity":[{"activity_type":"primary evaluation","activity_description":"Health 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Study"]}]},"data_access":{"dataset_availability":{"access_place":"The data from 2006 were distributed by the Quetelet-Progedo-Diffusion : https:\/\/data.progedo.fr\/.","complete":"","status":"{\"value\":\"Restricted access\",\"extLink\":[{\"title\":\"COAR\",\"uri\":\"http:\/\/purl.org\/coar\/access_right\/c_16ec\"}]}"},"dataset_use":{"restrictions":"Any commercial use is prohibited.","conditions":"the files are accessible free of charge for research purposes to French and foreign researchers, professor-researchers, doctoral students and master's degree students. You must create an account first to access the data files","conf_dec":[{"txt":""}],"spec_perm":[{"txt":"","required":""}],"contact":[{"name":""}],"deposit_req":"","cit_req":""},"notes":""}},"additional":{"IsImport":true,"versionLang":"en","originLang":"en","autoTranslation":false,"status":"imported","creationDate":"05-03-2013","lastUpdatedAuto":null,"lastUpdatedManual":"11-09-2017","isContributorPI":"No","contributorName":" DREES","contributorAffiliation":"DIRECTION DE LA RECHERCHE DES ETUDES DE L'EVALUATION ET DES STATISTIQUES (DREES)","addTeamMember":"","obtainedAuthorization":{"otherAuthorizingAgency":[]},"relatedDocument":[{"type":"","title":"","link":"http:\/\/www.drees.sante.gouv.fr\/les-enquetes-sur-la-prestation-de-compensation-du-handicap,6594.html"}],"regulatoryRequirements":{"conformityDeclaration":""},"fundingAgent":{"fundingAgentType":["Public (France)"],"otherFundingAgentType":[""]},"sponsor":{"sponsorType":["Public (France)"],"otherSponsorType":[""]},"governance":{"committee":""},"collaborations":{"networkConsortium":""},"theme":{"complementaryInformation":"","RareDiseases":""},"activeFollowUp":{"isActiveFollowUp":"No","followUpModeOther":""},"interventionalStudy":{"researchPurpose":[],"trialPhase":[],"interventionalStudyModel":"","isClinicalTrial":"","otherResearchPurpose":""},"isInclusionGroups":"","allocation":{"allocationMode":"","allocationUnit":""},"masking":{"maskingType":"","blindedMaskingDetails":[]},"arms":[],"intervention":[],"inclusionGroups":[],"collectionProcess":{"collectionModeDetails":"","collectionModeOther":""},"dataCollection":{"inclusionStrategyOther":"","samplingModeOther":"","recruitmentSourceOther":"","otherDocumentation":""},"dataCollectionIntegration":{"isDataIntegration":"No"},"geographicalCoverage":{"geoDetail":"France"},"dataTypes":{"clinicalDataDetails":"","biologicalDataDetails":"","isDataInBiobank":"No","biobankContent":[],"biobankContentOther":"","dataTypeOther":""},"variableDictionnary":{"variableDictionnaryAvailable":"","variableDictionnaryLink":""},"dataQuality":{"otherDocumentation":""},"mockSample":{"mockSampleAvailable":"","mockSampleLocation":""},"thirdPartySource":{"otherSourceType":[]},"isHealthTheme":"Yes","fileDscr":{"fileTxt":{"fileCitation":{"titlStmt":{"IDno":[]}}}}},"schematype":"survey"}