{"doc_desc":{"title":"Perceptions, connaissances et comportements du grand public vis-\u00e0-vis de la maladie d\u2019Alzheimer","idno":"FRESH-PEF73148-fr","producers":[{"name":"Christophe LEON","affiliation":"SANTE PUBLIQUE FRANCE"}]},"study_desc":{"title_statement":{"idno":"FRESH-PEF73148-fr","IDno":{"metadata_no":[{"agency":"PEF","code":"73148"},{"agency":"FReSH","code":"FRESH-PEF73148"}]},"title":"Perceptions, connaissances et comportements du grand public vis-\u00e0-vis de la maladie d\u2019Alzheimer","alternate_title":"DEOMA"},"study_authorization":{"agency":[{"name":"CNIL"}]},"authoring_entity":[{"type":"investigator","name":"Christophe;LEON","PILabo":"French Institute for Health Promotion and Health Education (INPES)","affiliationName":"SANTE PUBLIQUE FRANCE","extlink":[{"title":"ORCID","uri":"0000-0002-6014-2372","role":"pi id"},{"title":"IdRef","uri":"180235451","role":"pi id"},{"title":"SIREN","uri":"130022338","role":"organisation id"},{"title":"","uri":"","role":"labo id"}],"email":"christophe.leon@santepubliquefrance.fr","isContact":"Oui"}],"oth_id":[{"name":"Plan Alzheimer 2008-2012","type":"collaboration"}],"production_statement":{"prod_place":"Portail Epid\u00e9miologie France (PEF)","producers":[{"name":"SANTE PUBLIQUE FRANCE","extlink":[{"title":"ROR","uri":"https:\/\/ror.org\/00dfw9p58","role":"sponsor id"},{"title":"SIREN","uri":"130022338","role":"sponsor id"}],"role":"sponsor"}],"funding_agencies":[{"name":"SANTE PUBLIQUE FRANCE","extlink":[{"title":"ROR","uri":"https:\/\/ror.org\/00dfw9p58"},{"title":"SIREN","uri":"130022338"}]}]},"distribution_statement":{"contact":[{"name":"Christophe;LEON","email":"christophe.leon@santepubliquefrance.fr","type":"contact","affiliationName":"SANTE PUBLIQUE FRANCE","contactPointLabo":"","extlink":[{"uri":"https:\/\/ror.org\/00dfw9p58","role":"organisation id","title":"ROR"},{"uri":"130022338","role":"organisation id","title":"SIREN"}]}]},"study_info":{"keywords":[{"keyword":"Repr\u00e9sentations sociales"},{"keyword":"Enqu\u00eates"},{"keyword":"Professionnels de sant\u00e9"},{"keyword":"Patients"},{"keyword":"Population G\u00e9n\u00e9rale"},{"keyword":"Maladie d'Alzheimer"},{"keyword":"Opinions"},{"keyword":"Aidants"}],"topics":[{"topic":"G\u00e9riatrie","vocab":"health theme","extLink":[{"title":"ESV","uri":"http:\/\/data.europa.eu\/8mn\/euroscivoc\/d37e4d8c-a978-40c7-ba4f-eee841851073"},{"title":"MeSH","uri":"http:\/\/id.nlm.nih.gov\/mesh\/D005853"}]},{"topic":"Neurologie","vocab":"health theme","extLink":[{"title":"ESV","uri":"http:\/\/data.europa.eu\/8mn\/euroscivoc\/c4793dfe-e80e-49dd-9fcc-a1a742de1b25"},{"title":"ESV","uri":"http:\/\/data.europa.eu\/8mn\/euroscivoc\/00a5c4f4-b7ee-41a4-bcdf-3a02e6be1660"},{"title":"MeSH","uri":"http:\/\/id.nlm.nih.gov\/mesh\/D009462"}]},{"topic":"Maladie d'Alzheimer","vocab":"cim-11","extLink":[{"uri":"http:\/\/id.who.int\/icd\/entity\/1611724421","title":"CIM-11"}]},{"topic":"Syst\u00e8mes de soins et acc\u00e8s aux soins","vocab":"health determinant"},{"topic":"D\u00e9terminants comportementaux","vocab":"health determinant"}],"purpose":"Incluse dans le troisi\u00e8me axe strat\u00e9gique du Plan Alzheimer 2008-2012 intitul\u00e9 \u00ab se mobiliser pour un enjeu de soci\u00e9t\u00e9 \u00bb, L'ensemble des \u00e9tudes et enqu\u00eates du DEOMA vise \u00e0 am\u00e9liorer la \u00ab connaissance du regard port\u00e9 sur la maladie \u00bb. Le DEOMA offrent des regards crois\u00e9s sur la maladie d\u2019Alzheimer \u00e0 travers le grand public, les aidants formels et informels, les m\u00e9decins g\u00e9n\u00e9ralistes et les personnes malades.","abstract":"","coll_dates":[{"start":"2008-01-01","end":"2013-01-01"}],"nation":[{"name":"France","abbreviation":"fr","extLink":{"vocab":"ISO","vocabURI":"fr"}}],"geog_coverage":"","analysis_unit":"Individus","universe":"{\n    \"level_sex_clusion_I\": [\n        {\n            \"value\": \"Masculin\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D008297\"\n            }\n        },\n        {\n            \"value\": \"F\u00e9minin\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D005260\"\n            }\n        }\n    ],\n    \"level_age_clusion_I\": [\n        {\n            \"value\": \"Adulte (19 \u00e0 24 ans)\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D055815\"\n            }\n        },\n        {\n            \"value\": \"Adulte (25 \u00e0 44 ans)\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D000328\"\n            }\n        },\n        {\n            \"value\": \"Adulte (45 \u00e0 64 ans)\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D008875\"\n            }\n        },\n        {\n            \"value\": \"Personne \u00e2g\u00e9e (65 \u00e0 79 ans)\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D000368\"\n            }\n        },\n        {\n            \"value\": \"Grand \u00e2ge (80 ans et plus)\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D000369\"\n            }\n        }\n    ],\n    \"level_type_clusion_I\": \"Population g\u00e9n\u00e9rale\",\n    \"level_type_clusion_other\": \"\",\n    \"clusion_I\": \"Le dispositif m\u00eale des approches qualitatives, privil\u00e9gi\u00e9es pour approfondir les perceptions, attentes et besoins des publics concern\u00e9s, ainsi que des m\u00e9thodologies quantitatives qui permettent de disposer d\u2019indicateurs chiffr\u00e9s et de les suivre dans le temps. Il comprend huit enqu\u00eates et \u00e9tudes r\u00e9alis\u00e9es entre 2008 et 2013. Plus d'information sur les crit\u00e8res d'inclusion sur le site d\u00e9di\u00e9 : http:\\\/\\\/alzheimer.inpes.fr\",\n    \"clusion_E\": \"\"\n}","data_kind":"['Donn\u00e9es rapport\u00e9es par le participant de l'\u00e9tude']","quality_statement":{"standards":[{"name":"","committee":"","governance":""}],"other_quality_statement":"['Utilisation d\\'institut de sondage avec leurs propres labels qualit\u00e9 (BVA, Ifop, Ipsos, GFK-ISL)']"}},"study_development":{"development_activity":[{"activity_type":"primary evaluation","activity_description":"Ev\u00e9nements de sant\u00e9\/morbidit\u00e9\r\nConsommation de soins\/services de sant\u00e9\r\nQualit\u00e9 de vie\/sant\u00e9 per\u00e7ue"}]},"method":{"data_collection":{"time_method":"","frequency":"","sampling_procedure":"['{\"concept\":{\"vocabURI\":\"Other\",\"vocab\":\"CESSDA\"},\"value\":\"Autre\"}']","sample_frame":{"frame_unit":{"unit_type":"['Via les professionnels d'exercice lib\u00e9ral Via des structures (services ou \u00e9tablissements de sant\u00e9, \u00e9coles, entreprises\u2026) Base de population \u00e0 finalit\u00e9 statistique Base administrative (d'employ\u00e9s, d'\u00e9l\u00e8ves, d'\u00e9tudiants, etc\u2026) Base m\u00e9dico-administrative (de patients, Assurance Maladie\/Mutuelle)']"}},"coll_mode":["{\"concept\":{\"vocabURI\":\"Interview\",\"vocab\":\"CESSDA\"},\"value\":\"Entretien avec le participant (dont clinique)\"}"],"research_instrument":"Acc\u00e8s restreint sur projet sp\u00e9cifique","sources":[],"target_sample_size":"[10000-20000[ individus","response_rate":"4500 en population g\u00e9n\u00e9rale, 161 personnes malades, 305 aidants proches , 1 500 professionnels de sant\u00e9"},"method_notes":"Etude observationnelle","study_class":"Inconnu","notes":[{"subject":"research type","values":["Etude observationnelle"]}]},"data_access":{"dataset_availability":{"access_place":"","complete":"","status":"{\"value\":\"Acc\u00e8s r\u00e9serv\u00e9\",\"extLink\":[{\"title\":\"COAR\",\"uri\":\"http:\/\/purl.org\/coar\/access_right\/c_16ec\"}]}"},"dataset_use":{"restrictions":"","conditions":"Les bases de donn\u00e9es sont mises \u00e0 disposition sur demande et apr\u00e8s signature d'une convention avec l'INPES (Stata et Spss)","conf_dec":[{"txt":""}],"spec_perm":[{"txt":"","required":""}],"contact":[{"name":""}],"deposit_req":"","cit_req":""},"notes":""}},"additional":{"IsImport":true,"versionLang":"fr","originLang":"fr","autoTranslation":false,"status":"imported","creationDate":"10-07-2015","lastUpdatedAuto":null,"lastUpdatedManual":"19-10-2017","isContributorPI":"Non","contributorName":"Christophe LEON","contributorAffiliation":"SANTE PUBLIQUE FRANCE","addTeamMember":"","obtainedAuthorization":{"otherAuthorizingAgency":[""]},"relatedDocument":[{"type":"","title":"Questionnaire, rapport et synth\u00e8se","link":"http:\/\/alzheimer.inpes.fr"}],"regulatoryRequirements":{"conformityDeclaration":""},"fundingAgent":{"fundingAgentType":["Public (France)"],"otherFundingAgentType":[""]},"sponsor":{"sponsorType":["Public (France)"],"otherSponsorType":[""]},"governance":{"committee":"Oui"},"collaborations":{"networkConsortium":"Oui"},"theme":{"complementaryInformation":"","RareDiseases":""},"activeFollowUp":{"isActiveFollowUp":"Non","followUpModeOther":""},"interventionalStudy":{"researchPurpose":[],"trialPhase":[],"interventionalStudyModel":"","isClinicalTrial":"","otherResearchPurpose":""},"isInclusionGroups":"","allocation":{"allocationMode":"","allocationUnit":""},"masking":{"maskingType":"","blindedMaskingDetails":[]},"arms":[],"intervention":[],"inclusionGroups":[],"collectionProcess":{"collectionModeDetails":"Par t\u00e9l\u00e9phone, en face \u00e0 face, entretiens de groupe semi-directifs, entretiens individuels semi-directifs","collectionModeOther":""},"dataCollection":{"inclusionStrategyOther":"","samplingModeOther":"","recruitmentSourceOther":"","otherDocumentation":""},"dataCollectionIntegration":{"isDataIntegration":"Non"},"geographicalCoverage":{"geoDetail":"France"},"dataTypes":{"clinicalDataDetails":"","biologicalDataDetails":"","isDataInBiobank":"Non","biobankContent":[],"biobankContentOther":"","dataTypeOther":""},"variableDictionnary":{"variableDictionnaryAvailable":"","variableDictionnaryLink":""},"dataQuality":{"otherDocumentation":""},"mockSample":{"mockSampleAvailable":"","mockSampleLocation":""},"thirdPartySource":{"otherSourceType":[]},"isHealthTheme":"Oui","fileDscr":{"fileTxt":{"fileCitation":{"titlStmt":{"IDno":[]}}}}},"schematype":"survey"}