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National POLA Network for the Treatment of High-Grade Oligodendroglial Tumours

France, 2008
Reference ID
FRESH-PEF9222-en
Producer(s)
Jean-Yves Delattre
Metadata
DDI/XML JSON
Created on
Nov 15, 2025
Last modified
Nov 15, 2025
Page views
3
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts
  • Metadata production

    • Identification

    Survey ID number

    FRESH-PEF9222-en
    Title

    National POLA Network for the Treatment of High-Grade Oligodendroglial Tumours
    Abbreviation or Acronym

    POLA
    Country
    Name
    France
    Abstract

    The objectives of the POLA network for high-grade oligodendroglial tumours are threefold: - To harmonise tumour diagnosis techniques through the systematic organisation of a double histological analysis of tumour samples and their molecular characterisation Therapeutic treatment harmonisation. - Research development for rare tumours through the creation of a clinical database closely associated with the conservation of tumour samples and its accessibility to neuro-oncology research teams. - Distribution of information and knowledge among health professionals, patients and those close to them.
    Kind of Data

    ['Clinical data','Biological data','Paraclinical data (non-biological) : Imaging']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary URI
    Oncology health theme
    Neurology health theme
    cim-11 XH8844
    cim-11 http://id.who.int/icd/entity/467894833
    cim-11 http://id.who.int/icd/entity/1753426940
    Keywords
    oligodendrogliomas molecular profiling clinical trial

    Coverage

    Universe

    {
    "level_sex_clusion_I": [
    "Male",
    "Female"
    ],
    "level_age_clusion_I": [
    "Young Adult (19 to 24 years)",
    "Adult (25 to 44 years)",
    "Middle Aged (45 to 64 years)",
    "Aged (65 to 79 years)",
    "Aged, 80 and over (80 years and more)"
    ],
    "level_type_clusion_I": [
    "Patients population"
    ],
    "level_type_clusion_other": "",
    "clusion_I": "",
    "clusion_E": ""
    }

    Producers and sponsors

    Primary investigators
    Name
    Jean-Yves Delattre

    Study authorization

    Agency
    Agency name
    CNIL
    CPP

    Sampling

    Sampling Procedure

    ['Other']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start
    2008
    Mode of data collection
    • Converting or copying information into a structured record
    • Interview with the participant (including clinical)

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality Quality of life/health perception

    Data Access

    Availability Status

    Restricted access

    Contacts

    Contacts
    Name Email
    Jean-Yves Delattre jean-yves.delattre@aphp.fr

    Metadata production

    DDI Document ID

    FRESH-PEF9222-en
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