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Longitudinal Study of Patients with Epilepsy: Medical and Social Outcome Study

France, 1995 - 1996
Reference ID
FRESH-PEF9316-en
Producer(s)
Pierre Jallon
Metadata
DDI/XML JSON
Created on
Nov 15, 2025
Last modified
Nov 15, 2025
Page views
3
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Metadata production

    • Identification

    Survey ID number

    FRESH-PEF9316-en
    Title

    Longitudinal Study of Patients with Epilepsy: Medical and Social Outcome Study
    Abbreviation or Acronym

    C.A.R.O.L.E: Active network coordination of longitudinal epilepsy observatory
    Country
    Name
    France
    Abstract

    To assess the medical and social outcome of subjects with spontaneous epileptic seizures and to determine drug resistance predictors.
    Kind of Data

    ['Clinical data','Participant-reported health data','Paraclinical data (non-biological) : Imaging','Paraclinical data (non-biological) : Function testing']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary URI
    Neurology health theme
    cim-11 XH8844
    cim-11 http://id.who.int/icd/entity/467894833
    cim-11 http://id.who.int/icd/entity/1753426940
    Keywords
    First seizure drug-resistant crisis

    Coverage

    Universe

    {
    "level_sex_clusion_I": [
    "Male",
    "Female"
    ],
    "level_age_clusion_I": [
    "Child, Preschool (2 to 5 years)",
    "Child (6 to 12 years)",
    "Young Adult (19 to 24 years)",
    "Adult (25 to 44 years)",
    "Middle Aged (45 to 64 years)"
    ],
    "level_type_clusion_I": [
    "Patients population"
    ],
    "level_type_clusion_other": "",
    "clusion_I": "",
    "clusion_E": ""
    }

    Producers and sponsors

    Primary investigators
    Name
    Pierre Jallon
    Producers
    Name Role
    FONDATION FRANCAISE POUR LA RECHERCHE SUR L'EPILEPSIE (FFRE) sponsor
    Funding Agency/Sponsor
    Name
    FONDATION FRANCAISE POUR LA RECHERCHE SUR L'EPILEPSIE (FFRE)

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through independent healthcare practitioners Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['Other']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    1995 1996
    Time Method

    Longitudinal or cohort study
    Mode of data collection
    • Converting or copying information into a structured record
    • Interview with the participant (including clinical)

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality

    Data Access

    Access conditions

    Contact the principal investigator
    Availability Status

    Restricted access

    Metadata production

    DDI Document ID

    FRESH-PEF9316-en
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