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Chronic Kidney Disease - Renal Epidemiology and Information Network

France, 2013 - 2026
Reference ID
FRESH-PEF3087-en
Producer(s)
Bénédicte;STENGEL
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 16, 2026
Last modified
Feb 16, 2026
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  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Quality standards
  • Data Access
  • Contacts
  • Metadata production

    • Identification

    Survey ID number

    FRESH-PEF3087-en
    Title

    Chronic Kidney Disease - Renal Epidemiology and Information Network
    Abbreviation or Acronym

    CKD-REIN
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Participant-reported health data','Biological data','Socio-demographic data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Nephrology health theme
    Chronic kidney disease cim-11
    Socio-demographic and economic determinants health determinant
    Biological determinants: Genetic predisposition health determinant
    Behavioral determinants health determinant
    Behavioral determinants: Eating habits health determinant
    Healthcare system determinants: Use of care health determinant
    Biological determinants health determinant
    Healthcare system determinants health determinant
    Keywords
    organization of care and cost-effectiveness of practices Dialysis quality of life biomarkers

    Coverage

    Universe

    {
    "level_sex_clusion_I": [
    {
    "value": "Male",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008297"
    }
    },
    {
    "value": "Female",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D005260"
    }
    }
    ],
    "level_age_clusion_I": [
    {
    "value": "Young Adult (19 to 24 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D055815"
    }
    },
    {
    "value": "Adult (25 to 44 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000328"
    }
    },
    {
    "value": "Middle Aged (45 to 64 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008875"
    }
    },
    {
    "value": "Aged (65 to 79 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000368"
    }
    },
    {
    "value": "Aged, 80 and over (80 years and more)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000369"
    }
    }
    ],
    "level_type_clusion_I": [
    "Patients population"
    ],
    "level_type_clusion_other": "",
    "clusion_I": "",
    "clusion_E": ""
    }

    Producers and sponsors

    Primary investigators
    Name
    Bénédicte;STENGEL
    Producers
    Name Role
    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) sponsor
    UNIVERSITE LYON 3 JEAN MOULIN sponsor
    CENTRE HOSPITALIER REGIONAL ET UNIVERSITAIRE DE NANCY sponsor
    ETABLISSEMENT FRANCAIS DU SANG (EFS) sponsor
    UNIVERSITE PARIS-SACLAY sponsor
    AGENCE DE LA BIOMEDECINE sponsor
    UNIVERSITE CLAUDE BERNARD LYON 1 sponsor
    CENTRE HOSPITALIER UNIVERSITAIRE DE BORDEAUX sponsor
    CENTRE HOSPITALIER UNIVERSITAIRE AMIENS-PICARDIE sponsor
    COMMISSARIAT A L' ENERGIE ATOMIQUE ET AUX ENERGIES ALTERNATIVES (CEA) sponsor
    INSTITUT PASTEUR DE LILLE sponsor
    Arbor Research Collaborative for Health sponsor
    sponsor
    Other Identifications/Acknowledgments
    Name
    The Chronic Kidney Disease Outcomes and Practice Patterns Study (CKDopps); ISN iNET-CKD (International Network of Chronic Kidney Disease cohort studies); CHRONIC KIDNEY DISEASE PROGNOSIS CONSORTIUM (CKD-PC); CHRONIC KIDNEY DISEASE Genetic (CKD Gen); German CHRONIC KIDNEY DISEASE (German CKD).

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2013-01-01 2026-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"SelfAdministeredQuestionnaire","vocab":"CESSDA"},"value":"Self-administered questionnaire"}
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality Health care consumption and services Quality of life/health perception

    Quality standards

    Other quality statement

    ['CKD-REIN biobank received a bio-collection authorization from the French Ministry of Research, CODECOH n° AC-2012-1624 based on the Picardie Biobank quality standard']

    Data Access

    Access conditions

    Accessibility of the database will be determined case by case by the governing board in agreement with the scientific committee. The IP and contractual issues will be examined by Inserm Transfert. Special attention will be paid on confidentiality, ethical issues and on the use of the biobank to yield the greatest scientific value to the community and avoid depletion of this finite resource.
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
    Notes

    Data collected about CKD patients, their sociodemographic characteristics, their environment and their treatments, the organization of health care system based on a representative sample of providers in the field of CKD, and the biobank will provide a unique research platform of major interest for a number of public and private organizations involved in the field of CKD research and patient care. CKD-REIN will encourage innovative projects and broad use of these data by external research groups or firms.

    Contacts

    Contacts
    Name Email
    Elodie;SPEYER elodie.speyer@inserm.fr
    Bénédicte;STENGEL benedicte.stengel@inserm.fr

    Metadata production

    DDI Document ID

    FRESH-PEF3087-en
    Producers
    Name Affiliation
    Bénédicte STENGEL INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM)
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