Cohort of Patients with Melanoma

France, 2003 - 2018

Reference ID

FRESH-PEF60100-en

Producer(s)

Philippe;SAIAG

Metadata

DDI/XML JSON

Study website Interactive tools

Created on

Feb 16, 2026

Last modified

Feb 16, 2026

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Identification

Survey ID number

FRESH-PEF60100-en

Title

Cohort of Patients with Melanoma

Abbreviation or Acronym

MELAN-COHORT

Country

Name	Country code
France	fr

Kind of Data

['Participant-reported health data','Biological data','Paraclinical data (non-biological) : Imaging']

Unit of Analysis

Individuals

Scope

Topics

Topic	Vocabulary
Oncology	health theme
Dermatology	health theme

Keywords

tumour Health episodes overall survival disease-free survival

Coverage

Geographic Coverage

['Île-de-France']

Universe

{
"level_sex_clusion_I": [
{
"value": "Male",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008297"
}
},
{
"value": "Female",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D005260"
}
}
],
"level_age_clusion_I": [
{
"value": "Young Adult (19 to 24 years)",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D055815"
}
},
{
"value": "Adult (25 to 44 years)",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000328"
}
},
{
"value": "Middle Aged (45 to 64 years)",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008875"
}
}
],
"level_type_clusion_I": [
"Patients population"
],
"level_type_clusion_other": "",
"clusion_I": "",
"clusion_E": ""
}

Producers and sponsors

Primary investigators

Name
Philippe;SAIAG

Producers

Name	Role
ASSISTANCE PUBLIQUE HOPITAUX DE PARIS (AP-HP)	sponsor

Funding Agency/Sponsor

Name
SOCIETE FRANÇAISE DE DERMATOLOGIE ET DE PATHOLOGIE SEXUELLEMENT TRANSMISSIBLE
INSTITUT NATIONAL DU CANCER (INCA)
MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES
REGION ILE DE FRANCE

Sampling

Sample frame

Unit Type

['Through organizations (health services or institutions, schools, businesses, etc.)']

Sampling Procedure

['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

Survey instrument

Questionnaires

Access on specific project only

Methodology notes

Observational Study

Data collection

Dates of Data Collection

Start	End
2003-01-01	2018-01-01

Mode of data collection

{"concept":{"vocabURI":"SelfAdministeredQuestionnaire","vocab":"CESSDA"},"value":"Self-administered questionnaire"}
{"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

Study activities

Type

primary evaluation

Description

Health event/morbidity Health event/mortality

Data Access

Access conditions

Access conditions for academin teams: on submission of project to steering committee, assessment of quantities consumed, establishment of a "Material Supply and Collaboration Agreement" if partner is outside of MELAN-COHORT. Access conditions for industrial teams: on submission of project to steering committee, assessment of quantities consumed, establishment of a "Material Supply and Collaboration Agreement" with the DRCD

Availability Status

{"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

Restrictions

Data may be used by academic teams. Data may be use by industrial teams? Yes

Contacts

Name	Email
Philippe;SAIAG	philippe.saiag@aphp.fr

Metadata production

DDI Document ID

FRESH-PEF60100-en

Producers

Name	Affiliation
Philippe SAIAG	ASSISTANCE PUBLIQUE HOPITAUX DE PARIS (AP-HP)

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