FRESH-PEF231-en
Ile de la Réunion Congenital anomalies register
| Name | Country code |
|---|---|
| France | fr |
['Clinical data','Socio-demographic data']
Individuals
| Topic | Vocabulary |
|---|---|
| Certain infectious or parasitic diseases | cim-11 |
| Behavioral determinants: Addiction | health determinant |
| Socio-demographic and economic determinants | health determinant |
| Biological determinants: Genetic predisposition | health determinant |
| Healthcare system determinants: Use of care | health determinant |
| Environmental determinants: Other | health determinant |
| Behavioral determinants: Eating habits | health determinant |
| Environmental determinants | health determinant |
| Socio-demographic and economic determinants: Employment | health determinant |
| Behavioral determinants | health determinant |
| Biological determinants | health determinant |
| Healthcare system determinants | health determinant |
['La Réunion']
{
"level_sex_clusion_I": [
{
"value": "Male",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008297"
}
},
{
"value": "Female",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D005260"
}
}
],
"level_age_clusion_I": [
{
"value": "Infant, Newborn (birth to 28 days)",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D007231"
}
},
{
"value": "Infant (28 days to 2 years)",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D007223"
}
}
],
"level_type_clusion_I": [
"Patients population"
],
"level_type_clusion_other": "",
"clusion_I": "The Registry lists cases of malformation and chromosomal abnormality among living births, still births (from 22 weeks of amenorrhea or more), which are diagnosed within or at one year, as well as therapeutic abortions irrespective of the gestational age. The following are included in the registry: Congenital malformations diagnosed before or after the birth - up until the end of the infant's first year of life.",
"clusion_E": ""
}
| Name |
|---|
| Bénédicte;NATIVEL |
| Hanitra;RANDRIANAIVO |
| Name | Role |
|---|---|
| INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) | sponsor |
| SANTE PUBLIQUE FRANCE | sponsor |
| CENTRE HOSPITALIER UNIVERSITAIRE DE LA REUNION | sponsor |
| sponsor |
| Name |
|---|
| INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) |
| SANTE PUBLIQUE FRANCE |
| AGENCE REGIONALE DE SANTE |
['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']
Free access
Observational Study
| Start | End |
|---|---|
| 2002-01-01 | 3000-01-01 |
| Standard |
|---|
| ['ICD10 for malformations and diseases'] |
Access to individual (anonymized) data possible by request.
{"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
| Name | |
|---|---|
| Bénédicte;NATIVEL | benedicte.bertaut-nativel@chu-reunion.fr |
| Hanitra;RANDRIANAIVO | hanitra.randrianaivo@chu-reunion.fr |
FRESH-PEF231-en
| Name | Affiliation |
|---|---|
| Hanitra RANDRIANAIVO | CENTRE HOSPITALIER UNIVERSITAIRE DE LA REUNION |