FRESH-PEF271-en
Future development of children suffering from congenital heart diseases : a study in Ile de France
EPICARD
| Name | Country code |
|---|---|
| France | fr |
['Clinical data','Participant-reported health data']
Individuals
| Topic | Vocabulary |
|---|---|
| Paediatrics | health theme |
| Biological determinants: Genetic predisposition | health determinant |
| Biological determinants | health determinant |
['Île-de-France']
{
"level_sex_clusion_I": [
{
"value": "Male",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008297"
}
},
{
"value": "Female",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D005260"
}
}
],
"level_age_clusion_I": [
{
"value": "Infant, Newborn (birth to 28 days)",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D007231"
}
},
{
"value": "Infant (28 days to 2 years)",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D007223"
}
},
{
"value": "Child, Preschool (2 to 5 years)",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D002675"
}
},
{
"value": "Child (6 to 12 years)",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D002648"
}
}
],
"level_type_clusion_I": [
"Patients population"
],
"level_type_clusion_other": "",
"clusion_I": "Children (or fetus) suffering from congenital heart diseases detected in prenatal screening, at birth or during the first year of life, born (or interrupted) between 2005 and 2008, from mothers residents in Paris or inner suburbs (92, 93, 94 departments)",
"clusion_E": ""
}
| Name |
|---|
| François;GOFFINET |
| Babak;KHOSHNOOD |
| Nathalie;LELONG |
| Name | Role |
|---|---|
| INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) | sponsor |
| Name |
|---|
| ABBVIE |
| AREM CAR |
| INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) |
| MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES |
| SANTE PUBLIQUE FRANCE |
['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']
Access on specific project only
Observational Study
| Start | End |
|---|---|
| 2005-01-01 | 3000-01-01 |
Access to data with the accord fo the steering committee, priority to study participants
{"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
| Name | |
|---|---|
| François;GOFFINET | francois.goffinet@aphp.fr |
| Babak;KHOSHNOOD | babak.khoshnood@inserm.fr |
| Nathalie;LELONG | nathalie.lelong@inserm.fr |
FRESH-PEF271-en
| Name | Affiliation |
|---|---|
| Babak KHOSHNOOD | INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) |