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Multicentric prospective cohort of children and adolescents malignant hemopathies

France, 2004 - 3000
Reference ID
FRESH-PEF3269-en
Producer(s)
Pascal;AUQUIER, Gérard;MICHEL, Marie-Claude;SIMEONI
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
2
  • Study Description
  • Get Microdata
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts
  • Metadata production
  • Identification

    Survey ID number

    FRESH-PEF3269-en

    Title

    Multicentric prospective cohort of children and adolescents malignant hemopathies

    Abbreviation or Acronym

    LEA

    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Participant-reported health data','Biological data','Paraclinical data (non-biological) : Imaging']

    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Oncology health theme
    Hematology health theme
    Paediatrics health theme
    Diseases of the blood or blood-forming organs cim-11
    Healthcare system determinants: Use of care health determinant
    Healthcare system determinants health determinant
    Keywords
    Malignant hemopathies Leukemia Lymphoma Sequelae of leukemia or its treatment long term adverse side effects children adolescents

    Coverage

    Universe

    {
    "level_sex_clusion_I": [
    {
    "value": "Male",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008297"
    }
    },
    {
    "value": "Female",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D005260"
    }
    }
    ],
    "level_age_clusion_I": [
    {
    "value": "Child, Preschool (2 to 5 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D002675"
    }
    },
    {
    "value": "Child (6 to 12 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D002648"
    }
    },
    {
    "value": "Young Adult (19 to 24 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D055815"
    }
    },
    {
    "value": "Adult (25 to 44 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000328"
    }
    },
    {
    "value": "Middle Aged (45 to 64 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008875"
    }
    }
    ],
    "level_type_clusion_I": [
    "Patients population"
    ],
    "level_type_clusion_other": "",
    "clusion_I": "Patients with lymphoma, acute lymphoblastic and myeloblastic leukemia, aged less than 18 at the moment of the diagnosis, and diagnosed after January 1980. Patients are in a condition of hematological remission, and the treatment of the acute leukemia has begun in one of the investigation centers. Other criteria: resident in France, agree to participate, or parents agree for their minor children participation.",
    "clusion_E": ""
    }

    Producers and sponsors

    Primary investigators
    Name
    Pascal;AUQUIER
    Gérard;MICHEL
    Marie-Claude;SIMEONI
    Producers
    Name Role
    ASSISTANCE PUBLIQUE HOPITAUX DE MARSEILLE (AP-HM) sponsor
    Funding Agency/Sponsor
    Name
    AGENCE REGIONALE D'HOSPITALISATION (ARH)
    ASSISTANCE PUBLIQUE HOPITAUX DE MARSEILLE (AP-HM)
    AGENCE DE LA BIOMEDECINE
    AGENCE NATIONALE DE LA RECHERCHE (ANR)
    ASSOCIATION LAURETTE FUGAIN
    BRISTOL MYERS SQUIBB PHARMA FRANCE S.A
    GUERIDUNCANCER
    INSTITUT NATIONAL DU CANCER (INCA)
    LIGUE NATIONALE CONTRE LE CANCER (LNCC)
    MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES
    MSD FRANCE
    REGION PACA

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']

    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only

    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2004-01-01 3000-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"MeasurementsAndTests.Psychological","vocab":"CESSDA"},"value":"Psychological tests/clinical scales (depression, cognition, quality of life, etc.)"}

    Study activities

    Study activities
    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Quality of life/health perception

    Data Access

    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Pascal;AUQUIER pascal.auquier@univ-amu.fr
    Gérard;MICHEL gmichel@ap-hm.fr
    Marie-Claude;SIMEONI marie-claude.simeoni@univ-amu.fr

    Metadata production

    DDI Document ID

    FRESH-PEF3269-en

    Producers
    Name Affiliation
    Françoise VION-DURY UNIVERSITE D'AIX MARSEILLE
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