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HAUT-RHIN CANCER REGISTRY

France, 1982 - 2010
Reference ID
FRESH-PEF4865-en
Producer(s)
Emilie;MARRER
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
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  • Study Description
  • Get Microdata
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Quality standards
  • Data Access
  • Contacts
  • Metadata production
  • Identification

    Survey ID number

    FRESH-PEF4865-en

    Title

    HAUT-RHIN CANCER REGISTRY

    Abbreviation or Acronym

    ARER 68

    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Socio-demographic data']

    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Oncology health theme
    Neoplasms cim-11
    Behavioral determinants health determinant
    Biological determinants: Genetic predisposition health determinant
    Socio-demographic and economic determinants health determinant
    Healthcare system determinants: Use of care health determinant
    Environmental determinants health determinant
    Environmental determinants: Other health determinant
    Socio-demographic and economic determinants: Employment health determinant
    Behavioral determinants: Addiction health determinant
    Environmental determinants: Climate health determinant
    Behavioral determinants: Eating habits health determinant
    Biological determinants health determinant
    Healthcare system determinants health determinant
    Keywords
    Cancer incidence

    Coverage

    Geographic Coverage

    ['Grand Est']

    Universe

    {
    "level_sex_clusion_I": [
    {
    "value": "Male",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008297"
    }
    },
    {
    "value": "Female",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D005260"
    }
    }
    ],
    "level_age_clusion_I": [
    {
    "value": "Infant, Newborn (birth to 28 days)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D007231"
    }
    },
    {
    "value": "Infant (28 days to 2 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D007223"
    }
    },
    {
    "value": "Child, Preschool (2 to 5 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D002675"
    }
    },
    {
    "value": "Child (6 to 12 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D002648"
    }
    },
    {
    "value": "Young Adult (19 to 24 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D055815"
    }
    },
    {
    "value": "Adult (25 to 44 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000328"
    }
    },
    {
    "value": "Middle Aged (45 to 64 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008875"
    }
    },
    {
    "value": "Aged (65 to 79 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000368"
    }
    },
    {
    "value": "Aged, 80 and over (80 years and more)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000369"
    }
    }
    ],
    "level_type_clusion_I": [
    "Patients population"
    ],
    "level_type_clusion_other": "",
    "clusion_I": "The Haut-Rhin cancer registry includes all patients with a tumour that meet the criteria outlined below and who are residing in Haut-Rhin at the time of diagnosis. Tumours included: - malignant and invasive tumours during first identification of primary site or, alternatively, during identification of unknown primary site with metastases (the primary site declared as \"uncertain\" in this case), - benign intracranial tumours since 1991 are also recorded:- baso-cellular skin carcinoma, - non-invasive in situ or intraepithelial malignant tumours, no previous appearance of invasive tumour of the same histological type and site for the same subject, - non-invasive bladder tumours. However, calculations do not take into account the incidence of invasive malignancies. To compare data with registries that do not collect baso-cellular skin carcinomas, the incidence of double presentation of invasive skin tumours:",
    "clusion_E": "baso-cellular skin carcinoma and, separately, with baso-cellular skin carcinoma."
    }

    Producers and sponsors

    Primary investigators
    Name
    Emilie;MARRER
    Producers
    Name Role
    ASS RECHERCHE EPIDEMIOLOGIQUE REGISTRES (ARER68) sponsor
    Funding Agency/Sponsor
    Name
    COMMUNE DE COLMAR
    COMMUNE DE MULHOUSE
    CONSEIL DEPARTEMENTAL DU HAUT-RHIN
    INSTITUT NATIONAL DU CANCER (INCA)
    SANTE PUBLIQUE FRANCE

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']

    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only

    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    1982-01-01 2010-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}

    Study activities

    Study activities
    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity

    Quality standards

    Quality standards
    Standard
    ['CIM-0-3, CIM-10']

    Data Access

    Availability Status

    {"value":"To be defined","extLink":[]}

    Contacts

    Contacts
    Name Email
    Emilie;MARRER e-marrer@chru-nancy.fr

    Metadata production

    DDI Document ID

    FRESH-PEF4865-en

    Producers
    Name Affiliation
    Antoine BUEMI GROUPE HOSPITALIER DE LA REGION DE MULHOUSE ET SUD ALSACE (GHRMSA)
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