FRESH-PEF73183-en
Longitunal study on patients with locked-in syndrome: quality of life and evolution over a 6-year period
| Name | Country code |
|---|---|
| France | fr |
['Participant-reported health data']
Individuals
| Topic | Vocabulary |
|---|---|
| Locked-in syndrome | cim-11 |
| Socio-demographic and economic determinants | health determinant |
{
"level_sex_clusion_I": [
{
"value": "Male",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008297"
}
},
{
"value": "Female",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D005260"
}
}
],
"level_age_clusion_I": [
{
"value": "Adult (25 to 44 years)",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000328"
}
},
{
"value": "Middle Aged (45 to 64 years)",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008875"
}
},
{
"value": "Aged (65 to 79 years)",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000368"
}
}
],
"level_type_clusion_I": [
"People with disabilities"
],
"level_type_clusion_other": "",
"clusion_I": "The inclusion criteria were the following: adult patients, patients with LIS diagnoses according to the description of Plum and Posner [17] (i.e., complete or near-total loss of motor function, preservation of eye movements, anarthria, and preserved consciousness and intellectual function), and patients who agreed to participate. ",
"clusion_E": " minors, and patients with major motor recuperation."
}
| Name |
|---|
| Marie-Christine;ROUSSEAU |
| Name | Role |
|---|---|
| ASSISTANCE PUBLIQUE HOPITAUX DE PARIS (AP-HP) | sponsor |
| Name |
|---|
| ASSISTANCE PUBLIQUE HOPITAUX DE PARIS (AP-HP) |
['Population database for statistical purposes']
['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']
Access on specific project only
Observational Study
| Start | End |
|---|---|
| 2007-01-01 | 2013-01-01 |
{"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
| Name | |
|---|---|
| Marie-Christine;ROUSSEAU | marie-christine.rousseau@aphp.fr |
FRESH-PEF73183-en
| Name | Affiliation |
|---|---|
| Marie-Christine ROUSSEAU | ASSISTANCE PUBLIQUE HOPITAUX DE PARIS (AP-HP) |