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Longitudinal study of patients with cryoglobulinaemic vasculitis not associated with hepatitis C

France, 1995 - 2010
Reference ID
FRESH-PEF73201-en
Producer(s)
Benjamin;TERRIER
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
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3
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts
  • Metadata production

    • Identification

    Survey ID number

    FRESH-PEF73201-en
    Title

    Longitudinal study of patients with cryoglobulinaemic vasculitis not associated with hepatitis C
    Abbreviation or Acronym

    CryoVas
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Biological data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Rheumatology health theme
    Cryoglobulinaemic vasculitis cim-11
    Biological determinants: Genetic predisposition health determinant
    Environmental determinants: Other health determinant
    Biological determinants health determinant
    Environmental determinants health determinant
    Keywords
    vasculitis Cryoglobulinaemia CryoVas

    Coverage

    Universe

    {
    "level_sex_clusion_I": [
    {
    "value": "Male",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008297"
    }
    },
    {
    "value": "Female",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D005260"
    }
    }
    ],
    "level_age_clusion_I": [
    {
    "value": "Young Adult (19 to 24 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D055815"
    }
    },
    {
    "value": "Adult (25 to 44 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000328"
    }
    },
    {
    "value": "Middle Aged (45 to 64 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008875"
    }
    },
    {
    "value": "Aged (65 to 79 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000368"
    }
    },
    {
    "value": "Aged, 80 and over (80 years and more)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000369"
    }
    }
    ],
    "level_type_clusion_I": [
    "Patients population"
    ],
    "level_type_clusion_other": "",
    "clusion_I": "Patients with cryoglobulinaemic vasculitis not associated with HCV Diagnosis of cryoglobulinaemic vasculitis between January 1995 and July 2010 Cryoglobulin detectable in serum Systemic vasculitis defined by the presence of clinical manifestations of vasculitis in combination with at least purpura and\/or histological evidence.",
    "clusion_E": ""
    }

    Producers and sponsors

    Primary investigators
    Name
    Benjamin;TERRIER
    Producers
    Name Role
    ASSISTANCE PUBLIQUE HOPITAUX DE PARIS (AP-HP) sponsor
    Funding Agency/Sponsor
    Name
    ASSISTANCE PUBLIQUE HOPITAUX DE PARIS (AP-HP)

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    1995-01-01 2010-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity

    Data Access

    Access conditions

    Contact the principal investigator
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Benjamin;TERRIER benjamin.terrier@aphp.fr

    Metadata production

    DDI Document ID

    FRESH-PEF73201-en
    Producers
    Name Affiliation
    Benjamin TERRIER ASSISTANCE PUBLIQUE HOPITAUX DE PARIS (AP-HP)
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